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Parkinson's Advocates in Research
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Parkinson's Advocates in Research : ウィキペディア英語版
Parkinson's Advocates in Research
The Parkinson's Advocates in Research (PAIR) program is an initiative of the Parkinson's Disease Foundation (PDF) designed to prepare people with Parkinson's disease to serve as advocates within the clinical research process. The goal of the program to add a patient perspective to the field of Parkinson's disease clinical research, and ultimately improve outcomes by focusing on issues that researchers may overlook.
==Objectives==
PDF launched the PAIR program to align with a strategic imperative of the United States National Institutes of Health to enhance the role of the public in the clinical research enterprise and, ultimately, remove barriers that delay new treatments and cures from reaching the patient population. The PAIR program is built on the idea of patient engagement, according to PDF's director of national programs. The idea of patient engagement began in the 1980s and 1990s with the HIV/AIDS and breast cancer communities and has been evolving since then. Today, programs like PAIR describe the main idea of patient engagement to be viewing people with health issues not just as patients, but as health care consumers who, along with their medical teams, have a role in managing their treatment. Successful patient engagement improves not only an individual's health outcomes, but also that of the Parkinson's disease community as a whole through improved care and accelerated therapies.
Additionally, PDF's director of research programs identifies lack of trial participants as one of the chief obstacles to advancing Parkinson's disease clinical research (along with time and cost), with the PAIR program serving as PDF's main initiative to address this challenge.

抄文引用元・出典: フリー百科事典『 ウィキペディア(Wikipedia)
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